I love the Fall! Fall in Michigan means apple cider and donuts from the local cider mill, thick sweaters and jeans, and football. Fall in Texas means it’s hot, hot, HOT!!! And this momma’s temper fits right in with the Texas weather.
We are still waiting to hear back from our insurance company regarding our appeal of their decision that Little A’s therapies are not medically necessary. In the meantime, we have received a pile of invoices from the home health company that provided these therapies. They, of course, want to get paid. And we, naturally, want our insurance company to pay. There doesn’t seem to be an answer to this dilemma in sight.
Even though Little A hasn’t been receiving traditional therapies, I have been trying to keep up with the exercises her therapists were doing with her, along with others I found on youtube. She fights me, and cries, and gets mad and frustrated, which stresses me out, but we have made a few small improvements. I am proud of her, and proud of myself for keeping at it when I really just want to quit. After all, no mother likes to be the source of her child’s tears and I am no exception.
Aside from Little A’s therapies, I have been kicking booty in my online classes toward my Master’s degree. I currently have a 3.7 GPA, and an A in my current class, and have done so with the support of Little A’s daddy. He helps out more when I have a ton of homework to do, and keeps A busy so I can focus. I appreciate that man more than he knows. It will be worth it when I finally have my degree in hand and can begin focusing on job hunting once again. Surely a master’s degree will ensure a higher pay rate, right???
C and I have been watching A & E’s show, Born This Way, and are feeling much more hopeful about Little A’s future. Those adults with Down syndrome are living life and doing so much; living on their own, getting a drivers license, getting married…all things we worry Little A will never do. This show gives us so much hope, and I pray that others watching will see so much more in people with Down syndrome than just their extra chromosome.
I have discovered I have an addiction to shopping for Addison Grace~ she now has more clothing in her closet than we do!!! I blame the Kidizen app. It’s a place to buy and sell children’s clothing, but I tend to “buy” more than I “sell”. Our favorite items come from Tea Collection, Hallmark Baby, Kate Quinn Organics, Burt’s Bees, Janie & Jack, Livie & Luca, Matilda Jane, Giggle Moon, Haute Baby…the list goes on and on! Unfortunately my bank account does not, so I am trying to curb my shopping. But it is hard. You’ve seen her face! How could anyone deny her anything?!
I have also found another app, Mercari, that allows me to list her clothing for sale. Thank goodness! Between those two apps and eBay I am hoping to get rid of eveything that no longer fits Little A (and pay for the new stuff I’ve already purchased). Help a momma out! If you need baby girl clothing in sizes 0 to 12 months, check us out! I am Addi’s Momma on Kidizen and TexasDSMomma on Poshmark.
We are always looking for other blogs, articles, videos, etc. related to DS and therapies to learn from. If you have suggestions, please feel free to leave them in the comments. And if you know of another awesome kids clothing app, please let me know! Thank you, and Happy Fall Y’all! 🙂